Putting Patients First: How to bring a different approach to rare disease studies
Event Date: 13th May 2025
Event Time: 10:00am Eastern Time
Event Location: Virtual Webinar
Register NowUnderstanding the patient pathway – what it means for a person to have that actual disease – before study initiation is critical to running effective rare disease studies.
Many trials continue to overlook key barriers to participation, from accessibility and trust to communication and support. This webinar will explore how applying insights from an understanding of the patient pathway in both study design and execution can improve trial enrollment, retention, and outcomes in rare disease studies.